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With drug overdoses now the leading cause of accidental death in the U.S., efforts are underway in many states to limit abuse and access to prescription opioids — steps that, some say, could cause unnecessary suffering among sickle cell disease (SCD) patients who rely on these medications to treat their symptoms.
“I’m seeing more and more patients calling me or coming in and saying they’re in so much pain and have been taken off the narcotics they have been receiving for years,” said Judy Anderson, executive director of the Sickle Cell Association in Norfolk, Virginia, an education and advocacy organization.
education & researchCaregiver Perceptions of Adolescent Self-Management Skills Predict Higher Disease Knowledge Among Adolescents With S...Introduction: The increased survivorship...
education & researchCare Coordination for Children With Sickle Cell Disease: A Longitudinal Study of Parent Perspectives and Acute Care ...INTRODUCTION: Care coordination (CC), a ...
Community CenterYour Genes Your HealthShort video interview with Maya Priest o...
Community CenterToday’s Faces of Sickle Cell Disease: Wanda Whitten-Shurney, MDWanda Whitten-Shurney is a pediatrician,...
news & eventsKids With Sickle Cell Anemia are More Sedentary Than Healthy Peers, Study SuggestsChildren and adolescents with sickle cel...
videos & visualsCord Blood Transplants: A Sickle Cell Curehttps://www.youtube.com/watch?v=8EaJr3Qp...
people & placesDr. Nina AndersonDr. Nina Anderson, completed her doctora...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.