DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
compose your message
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Sickle Strong Initiative – Dr. Marie Ojiambo
I was born into a family of four (second born) children where my brother, our first born also suffers full-blown sickle cell disease. My two younger siblings do not suffer the condition, one having normal hemoglobin while the other is a carrier but totally asymptomatic for the disease. My family has learnt how to work around my brother and myself especially when we fall sick and require extra attention. While younger, the burden of sickle cell disease on my body seemed to be greater. As I grew, I’ve learnt how to take care of my body and how to listen to it and look out for any impending complications or infections that could lead to a crisis episode. I now suffer less pain and I’m leading a much more productive life.
education & researchNewborn Screening Guide for ParentsMost babies born in the United States ar...
news & eventsWNY Girl Gets First Pediatric Bone Marrow Transplant for Sickle Cell in BuffaloKayla Rushing is the first pediatric pat...
videos & visualsSickle Cell – Wanda Whitten Shurneyhttps://www.youtube.com/watch?v=vgZ6QmA4...
people & placesMachnik Sickle Cell Foundation UgandaMachnik Sickle Cell Foundation Uganda (M...
education & researchExplaining Blood Transfusions to a Child With Sickle Cell DiseaseYou are receiving this brochure because ...
people & placesCarolinas Sickle Cell Collaborative (StepUp4Sickle)The Collaborative is a joint effort betw...
Community CenterBold Lips for Sickle CellIt was started on 19 August 2014 by Sham...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.