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Sickle What? is an educational book written in simple language with helpful illustrations to explain complex medical concepts and terminology. Sickle What? arms patients and parents of newly diagnosed children with the knowledge they need to understand and manage sickle cell disease (SCD).
Information about what SCD is and how a person gets it is broken down into easy-to-understand terms to help parents better understand and be able to explain SCD to a child – empowering the child to understand what is actually happening inside their body. Sickle What? shows readers how to read and understand a lab report, what action steps to take when pain occurs and the importance of asking questions and communicating openly with doctors.
education & researchOpioid utilization by pregnant women with sickle cell disease and the risk of neonatal abstinence syndromeBACKGROUND:Pregnant women with sickle ce...
education & researchPediatric pain screening identifies youth at risk of chronic pain in sickle cell diseaseBackground: This study aimed to evaluat...
people & placesKenneth R. Peterson, PhDKenneth R. Peterson is the Professor and...
people & placesKathryn E Scott, MDDr. Scott is affiliated with General Ped...
news & eventsVaso-Occlusive Pain Linked to Menstruation in Some Patients, Study FindsAcute vaso-occlusive pain is associated ...
news & eventsEmerging opportunities in sickle cell disease cure, treatment and pain managementIn support of City of Hope’s recent CI...
Community CenterKyriako Damavoletes Talks About the Stigma of Sickle Cell DiseaseKyriako Damavoletes has HbS beta thalass...
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