DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Chronic pain, health complications and frequent trips to the emergency room are everyday concerns for an estimated 10,000 New Yorkers living with sickle-cell disease.
Together, these individuals account for 10 percent of the country’s population diagnosed with the inherited blood disorder. Despite this geographic concentration, patients, advocates and health providers say that funding and overall quality of care continues to fall short in New York State.
In 2017, the state allocated $250,000 to sickle-cell in its annual budget. Legislation to boost that funding has been introduced in both the New York State Assembly and Senate, asking for a budget of $3 million.
news & eventsSickle Cell Disease Virtual Forum: Historically Black Colleges and Universities 16-Day ChallengeYou’re invited to the Sickle Cell Dise...
education & researchHydroxyurea Treatment for Sickle Cell DiseaseHydroxyurea is a medicine that can help ...
people & placesDavid Beidler, PhDAs the Translational Sciences lead for t...
videos & visualsIU Nurse Invents Medical Device for People With Sickle Cell Diseasehttps://www.youtube.com/watch?v=TjE3Urth...
videos & visualsSickle Cell Disease Coalition (SCDC)https://www.youtube.com/watch?v=oQP-Uq0B...
people & placesAflac Cancer and Blood Disorders Center of Children’s Healthcare of AtlantaAs one of the leading pediatric cancer, ...
education & researchPatient controlled analgesia for adults with sickle cell disease awaiting admission from the emergency departmentBackground: A treatment algorithm for s...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.