Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Thalassemia Patients Network
1139 St. John’s PlaceBrooklyn, New York, United States
Email Phone Web
Since April of 1992, the Sickle Cell Thalassemia Patients Network (SCTPN) has been providing education, advocacy, referral services, and support for individuals and families living with sickle cell disease, thalassemia (Cooley’s Anemia), and other inherited blood disorders. SCTPN, is a 501 (c)(3) tax-exempt organization, which provides education, advocacy, referral services, and support for individuals and families living with sickle cell disease (SCD), thalassemia (Cooley’s Anemia), and other inherited blood disorders.
Public education programs and webinars are provided to help increase awareness of hemoglobin disorders. These programs also provide non-medical information that empowers individuals to take control of their health and thus enjoy a better quality of life. Advocacy is provided for families as they migrate the sometimes complicated healthcare system. Referrals for related services are also provided.
+myBinderRelated Content
-
Diana Wells RN, MSW, MPHDiana Wells serves as a clinical social ...
-
Tristan LeeTristan Lee is a talented model, actor, ...
-
Sickle Cell Disease CoalitionThe Sickle Cell Disease Coalition (SCDC)...
-
Providing Expert Care for Pregnant Sickle Cell Patienthttps://www.youtube.com/watch?v=rTebitxq...
-
The Empowered Caregivers Forum: A Support Resource for Parents / Caregivers of Warriors With Sickle Cell / Thalassem...Join Carla Lewis, CEO of Kids Conquering...
-
Maidunama Sickle Cell FoundationMaidunama Sickle Cell Foundation is prin...
-
Men Living Well with Sickle Cell Guys Night OutMen with sickle cell disease open up can...
