Trusted Resources: Evidence & Education
Scientific literature and patient education texts
How I take charge of my own care as someone with sickle cell disease
source: The Mighty
year: 2017
authors: Marissa Cors
summary/abstract:The most complicated and most important relationship I have is the one I have with myself. After all, I’m the constant in all of the relationships I have. My thoughts, feelings and actions dictate all of my relationships from beginning to end. How I view myself is the largest factor in all of my relationships. It not only dictates the type of people I attract and allow in my life, it is the driving force in how I treat them and how I allow myself to be treated and for how long.
Having sickle cell, I have no choice other than to be a leader. Especially when it comes to dealing with my doctors and nurses in and out of the hospital. At a very young age my mother began to teach me to trust my instincts and stand by my decisions. That meant that I not only had to believe in myself but, I had to without question or hesitation tell people what I needed and speak up when they did something wrong. At 2 years old my mother taught me to place my hand over possible I.V. site and say “No!” to the nurse attempting to start the I.V. That was my first lesson in not only guiding my nurses but also in knowing me.
read moreRelated Content
-
You’d never know this 2-year-old has sickle cell anemiaWhen you meet 2-year-old Evelyn Islam, t...
-
Her Sickled JourneyHi guys I'm Tito, I’m a 23 year old Lo...
-
A Child Prodigy, a Painful Disease, and a Life-Changing Treatmenthttps://www.youtube.com/watch?v=SpzjD1ct...
-
The neglected and forgotten Sickle Cell Disease – A silent mass killer in Kenyahttps://www.youtube.com/watch?time_conti...
-
The clinical presentation, utilization, and outcome of individuals with sickle cell anaemia presenting to urban emer...Background: Sickle cell anaemia (SCA) i...
-
Sickle Cell Disease in the Emergency Department: Confronting Barriers to Care“You’re too pretty to have a disease...
-
Impact of Neuropathic Pain on Quality Of Life in Adults With Sickle Cell Disease: Observational StudyIntroduction: Knowledge on the characte...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.