Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Living With Sickle Cell Disease – NHS UK
source: NHS UK
year: 2019
summary/abstract:There are a number of things you can do, and precautions you can take, to stay as healthy as possible if you have sickle cell disease.
Managing Sickle Cell Pain:
You can reduce your risk of painful episodes (sickle cell crises) by avoiding things that can trigger them.
• Drink plenty of fluids, particularly during hot weather – dehydration increases the risk of a sickle cell crisis
• Avoid extreme temperatures – you should dress appropriately for the weather and avoid sudden temperature changes, such as swimming in cold water
Pregnancy and Contraception:
Women with sickle cell disease can have a healthy pregnancy, but it’s a good idea to speak to your healthcare team for advice first.
It may be useful to find out if your partner is a carrier of sickle cell and discuss the implications of this with a counselor.
Some sickle cell disease medicines, such as hydroxycarbamide, can harm an unborn baby. You may need to be stop taking them before trying to get pregnant.
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