Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Hematopoietic Stem Cell Transplantation in Children With Sickle Cell Anemia: The Parents’ Experience
source: Pediatric Transplantation
year: 2019
authors: Cavadini R, Drain E, Bernaudin F, D'Autume C, Giannica D, Giraud F, Baubet T, Taïeb O
summary/abstract:Genoidentical HSCT is currently the only curative treatment for SCA, preventing further vascular complications in high-risk children. Studies on the psychological implications of HSCT for recipient, sibling donor, and the rest of the family have been limited in SCA. This study enrolled ten families and used semi-structured interviews to explore the parents’ experience at three time points: first before transplantation, then 3 months later, and 1 year later. Three themes emerged from the results: (a) the presence of anxiety, experienced throughout the process, and alleviated by coping strategies (positive thinking, family support, praying); (b) the ability to remain parents to recipient and other family members, despite apprehension and feelings of helplessness, reinforced by the mobilization of important resources at the individual/family levels; (c) the ability to acknowledge the opportunity for their child to be cured of the disease, despite feelings of guilt toward families without a donor, or their own families back home. Overall, the parental experience with HSCT is complex, involving intra-psychic, familial, cultural, religious, and existential factors. Thus, it is important for medical teams to be cognizant of these issues in order to provide the best support to families during the HSCT process.
organization: Hôpital Maison Blanche, France; Paris XIII University & Assistance Publique-Hôpitaux de Paris, France; Centre Hospitalier Intercommunal, FranceDOI: 10.1111/petr.13376
read more
Related Content
-
65th American Society of Hematology (ASH) Annual Meeting & ExpositionThe 65th ASH Annual Meeting and Expositi...
-
Association Between Hospital Admissions and Healthcare Provider Communication for Individuals With Sickle Cell Disea...Objective: To test the hypothesis that ...
-
Today’s Faces of Sickle Cell Disease: Wanda Whitten-Shurney, MDWanda Whitten-Shurney is a pediatrician,...
-
Sickle cell disease: when to transfuseHello. I am Dr Mary Hulihan, a health sc...
-
How bones make blood – Melody Smithhttps://www.youtube.com/watch?v=1Qfmkd6C...
-
Sickle Cell Pulmonary Clinic, Connecticut Children’s Medical CenterConnecticut Children’s is one of the f...
-
Cheryl Mensah, MDCheryl Mensah is an Assistant Professor ...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.