Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Disease knowledge, illness perceptions, and quality of life in adolescents with sickle cell disease: Is there a link?
source: Global Pediatric Health
authors: Asnani MR, Barton-Gooden A, Grindley M, Knight-Madden Jsummary/abstract:
Disease knowledge, illness perceptions, and quality of life (QOL) were examined in 150 adolescents (mean age = 16.1 years, SD = 1.9; 49.3% males) with sickle cell disease (SCD). Females had higher knowledge (P = .004), lower QOL (P = .02), and perceived their illness to be more unpredictable (P = .03). Those with more severe disease perceived their illness to be unpredictable with worse outcomes. Those with higher knowledge scores perceived their illness to be chronic, made more sense of their illness, and perceived greater personal and treatment control. Final hierarchical regression model showed that secondary education as compared to primary education level (P < .001) was positively correlated whereas disease severity (P < .001), perceived unpredictability (P = .024), and negative emotions (P < .001) were negatively correlated with QOL. Health practitioners should assess adolescents’ illness perceptions and encouraging continuing schooling and addressing emotional/psychological problems could improve their QOL.organization: The University of the West Indies, Jamaica
read more full text
A Guide to Living With Sickle Cell Disease: Define Yourself, Define Your LifeDefine yourself, define your life. No ma...
MKSAP: 24-Year-Old Woman With Sickle Cell AnemiaA 24-year-old woman undergoes routine ev...
The Experience and Health-Related Quality of Life After Haploidentical Stem Cell Transplantation for Adults With Sic...Haploidentical hematopoietic stem cell t...
St Jude Patient Story: Brycehttps://www.youtube.com/watch?v=p6xWFUlQ...
Magical Monday Motivation: Sickle Cell Warrior # 17Living with Sickle Cell disease requires...
Melissa S. CrearyI was working on Gilberto’s narrative ...
Sickle cell patients, families and doctors face a ‘fight for everything’Francesca Valentine is gearing up for a ...
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.