Google
Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Disease knowledge, illness perceptions, and quality of life in adolescents with sickle cell disease: Is there a link?
source: Global Pediatric Health
year: 2017
authors: Asnani MR, Barton-Gooden A, Grindley M, Knight-Madden J
summary/abstract:Disease knowledge, illness perceptions, and quality of life (QOL) were examined in 150 adolescents (mean age = 16.1 years, SD = 1.9; 49.3% males) with sickle cell disease (SCD). Females had higher knowledge (P = .004), lower QOL (P = .02), and perceived their illness to be more unpredictable (P = .03). Those with more severe disease perceived their illness to be unpredictable with worse outcomes. Those with higher knowledge scores perceived their illness to be chronic, made more sense of their illness, and perceived greater personal and treatment control. Final hierarchical regression model showed that secondary education as compared to primary education level (P < .001) was positively correlated whereas disease severity (P < .001), perceived unpredictability (P = .024), and negative emotions (P < .001) were negatively correlated with QOL. Health practitioners should assess adolescents’ illness perceptions and encouraging continuing schooling and addressing emotional/psychological problems could improve their QOL.
organization: The University of the West Indies, JamaicaDOI: 10.1177/2333794X17739194
read more full text
+myBinderRelated Content
-
A Warrior Series: Bukky AdeyokunnuAfter a recent stint in the hospital, I ...
-
A Patient Advocate’s Take on Sickle Cell Disease: The Pain and the PromiseSeptember is National Sickle Cell Awaren...
-
Sickle Cell and the Work PlaceSickle cell patients find it very tough ...
-
Parents’ StoriesFor couples of African, Caribbean, Middl...
-
Screening for sickle cell and beta thalassaemiaSickle cell and beta thalassaemi...
-
8 Tips to Support Students With Sickle Cell DiseaseIn the United States, sickle cell diseas...
-
Billy Garrett Jr. Chases Dream in the G LeagueOn a frigid New York Friday evening in F...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.