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Artist Panteha Abareshi Opens Up About Sickle Cell Disease and Expressing Her Pain Through Art in “The Girl Who Loves Roses”
When you suffer from a chronic condition, whether it be mental or physical — every day can start to feel like a battle. The non-stop pain becomes a part of you, of the way you move through life and express yourself to the world and to others. And it can get exhausting — both physically and emotionally — to say the very least. No one understands this better than Panteha Abareshi, a 17-year-old artist from Arizona who was born with Sickle Cell Beta Zero Thalassemia, a genetic condition that causes her chronic pain and severely limits her physical activity. Imagine not being able to go on long walks on the beach, workout after a stressful day, or enter to run in a marathon. These are all things we often take for granted, but this is Panteha’s reality.
Community CenterTionne ‘T-Boz’ Watkins to dish on her Incurable disease, TLC Stardom and left eye’s death in new m...Many storms have come and gone...
news & eventsSiri saves sick girl from Harvey floodwatersStranded outside in the rising waters of...
news & eventsEnvironmental, genetic factors may predict longevity in sickle cell diseaseA case series of individuals with sickle...
education & researchImpact of Neuropathic Pain on Quality Of Life in Adults With Sickle Cell Disease: Observational StudyIntroduction: Knowledge on the characte...
education & researchOpioid use is not associated with in-hospital mortality among patients with sickle cell disease in the United StatesBackground: Vaso-occlusive pain crises ...
news & events6th Annual Sickle Cell Leadership Summit & General Assembly of Patients, Caregivers and CBOsThe Leadership Summit is the primary mee...
Community CenterReal Stories From People Living With Sickle Cell DiseaseMikeia Green was born with Sickl...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.