Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
The Sickle Cell Data Collection (SCDC) program collects health information about people with sickle cell disease (SCD) to study long-term trends in diagnosis, treatment, and healthcare access for people with SCD in the United States. The program will help inform policy and healthcare standards that improve and extend the lives of people with SCD.
Early screening, diagnosis, and treatment have allowed people with SCD to live much longer, making now a more important time than ever to study SCD health across the life course.
The SCDC program strives to improve health outcomes for people with SCD. By documenting health information of patients with SCD in the United States over time, the program can identify critical gaps in diagnosis, treatment, and healthcare access for people with SCD.
+myBinderRelated Content
-
2022 PCORI Annual MeetingThe PCORI Annual Meeting brings together...
-
The Sickle Cell Disease Association of Canada – SCDACcdac/AAFCWe are a non-profit Sickle Cell Disease ...
-
Donna DixonDonna Dixon is President at Denver Sickl...
-
Cianna’s SmileCianna’s Smile is a registered charity...
-
Shak’s HopeShak’s Hope is a 501 (c) 3 non-profit ...
-
@SCDAAorgThe Sickle Cell Disease Association of A...
-
Today’s Faces of Sickle Cell Disease: Courtney Fitzhugh, M.D.Courtney Fitzhugh first became intereste...
