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community organizations

Sickle Cell Anemia Foundation of Oregon

4566 NE 87th Ave
Portland, Oregon, United States
Email   Phone   Web  

The Sickle Cell Anemia Foundation of Oregon is a 501(c)(3) non-profit organization dedicated to educating vulnerable populations and to encourage testing for the presence of this painful and life-threatening, but treatable disease. The foundation helps patients with: Patient advocacy, Access to support groups, Parent education, Genetic counseling and referrals for free diagnostic testing, Ongoing education about SCD and about available treatments, Limited funds for home heating during winter months, and Moral support.

Our immediate objective is to identify all the patients and carriers of sickle cell disease living in Alaska, Idaho, Oregon, and Washington state. We are dedicated to assessing the health care needs of these patients and helping them by facilitating regular access to appropriate health care providers and services. Our Pacific Northwest outreach program aims to provide individuals with the information they need to be tested for the presence of sickle cell disease. Diagnosed patients are encouraged to sign up with the national “Get Connected” Sickle Cell Anemia registry.

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