Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Network of Rare Blood Disorder Organizations
36 Toronto Street, Suite 1Barrie, Ontario, Canada
Email Web
The Network of Rare Blood Disorder Organizations (NRBDO) is a coalition of national patient groups, formed to share the best practices in health care delivery for people with rare blood disorders such as hereditary angioedema; aplastic anemia, Fanconi anemia, paroxysmal nocturnal hemoglobinuria (PNH), and myelodysplasia; primary immune deficiency; porphyria, sickle cell disease, thalassemia, thrombotic thrombocytopenic purpura (TTP), hemophilia, and von Willebrand disease.
They work and advocate together in a coordinated fashion, toward high quality, effective, accessible, interdisciplinary care for all Canadians affected by rare blood disorders. Their mandate is to improve the healthcare delivery for people affected by rare blood disorders by:
-working together to ensure the best comprehensive care
-ensuring a safe and secure blood system
-supporting the members by sharing best practices in governance
-developing skills in health care advocacy
-avoiding overlap and inefficiencies
+myBinderRelated Content
-
Sickle Cell Warriors: Session 2https://vimeo.com/286941813...
-
Pfizer and the national newspaper publishers association collaborate to raise awareness of sickle cell disease and n...Pfizer Inc. and the National Newspaper P...
-
28-Year-old Sickle Cell Survivor Becomes Medical DoctorA 28-year-old sickle cell anaemia surviv...
-
The Sickle in MeThe Sickle In Me is a Charitable, not-fo...
-
Have A Heart for Sickle Cell Anemia FoundationThe Have A Heart for Sickle Cell Anemia ...
-
Sickle Cell 101Sickle Cell 101 is a 501(c)(3) nonprofit...
-
Greensboro 7-Year-old With Sickle Cell Disease Raises Money for Kids Like himTJ Wilson has sickle cell disease. His t...
