Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Lived Experiences of Patients With Sickle Cell Disease and Kidney Failure: Insights From a Qualitative Study
Abstract Patients with sickle cell disease (SCD) experience multisystem complications, with sickle cell nephropathy being a major contributor to chronic kidney disease and kidney…
Rewriting the Hemoglobin Switch: CRISPR Targeting in Sickle Cell Disease
The RUBY trial demonstrates that disrupting the BCL11A binding site in the γ-globin promoters can normalize hemoglobin in severe sickle cell disease. Background: The Problem Is…
Beam to seek OK of gene-edited cell therapy risto-cel for sickle cell disease
The BEACON clinical trial showed therapy's lasting benefits in 31 patients Beam Therapeutics plans to ask the U.S. Food and Drug Administration (FDA) to approve ristoglogene…
KNUST to host national World Sickle Cell Awareness Day event
The Focus on Sickle Cell (FoSCel) Foundation has announced that the Great Hall of the Kwame Nkrumah University of Science and Technology (KNUST) in Kumasi will host the national…
Georgia lawmakers pass Sickle Cell Disease Protection Act, expanding care for thousands statewide
A major step forward for sickle cell care in Georgia is now awaiting the governor's signature. On the final day of the 2026 legislative session, lawmakers passed House Bill 334 —…
Anaemia
Anaemia is a common condition characterised by a lower-than-normal number of red blood cells or haemoglobin in the blood. Anaemia is a major health concern in India and is a…
Efficacy of Automated Red Cell Exchange for Sickle Cell Disease: A Cross-Sectional Study
Background: Sickle cell disease is a hereditary hemoglobinopathy commonly seen in sub-Saharan Africa, India, and the Middle East. It is caused by a mutation in the β-globin gene…
Cost-Effectiveness of Routine Outpatient Follow-Up Intervals in Adults with Sickle Cell Anemia: A Pilot Study from Cameroon
Ngoe Samuel Bakia Department of Pharmaceutical Sciences, Faculty of Medicine and Biomedical Sciences, University of Yaoundé 1, Cameroon. Chetcha Bernard Chenmagni Department of…
Georgia passes a bill to ensure Medicaid covers sickle cell treatment, informed by real stories
A group of advocates, caregivers and people with sickle cell anemia walk into the Georgia Capitol to share their stories about sickle cell in March 2026.
A Cure at Any Cost? — The $3.1 Million Sickle Cell Breakthrough Stirs Hope and Outrage
On December 17, 2024, a quiet but seismic shift happened in a hospital on Long Island. A 21-year-old Black man named Sebastien Beauzile , who had spent most of his life shuttling…
First Patients Cured of Sickle Cell Disease With Gene Editing
A historic medical milestone has been reached in the fight against Sickle Cell Disease . Doctors in New York have successfully cured patients using a revolutionary gene-editing…
Sickle cell disease has just been cured for the first time in New York
For 21 years, Sebastien Beauzile lived with a disease that shaped every part of his existence. Chronic pain, hospital stays, a body that could not be trusted, and a future that…