The scientist thinking past the breakthrough
In the tribal communities of Odisha and the plains of Gujarat, a disease has traveled quietly through bloodlines for centuries, unannounced and largely unaddressed. Sickle cell…
Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Silver Spring Woman Becomes First Adult Sickle Cell Disease Patient in Maryland to Receive FDA-Approved Gene Therapy
A 41-year-old Silver Spring woman who has endured debilitating pain crises and frequent hospitalizations throughout much of her life as the result of sickle cell disease has been…
First Patients Cured of Sickle Cell Disease With Gene Editing
A historic medical milestone has been reached in the fight against Sickle Cell Disease . Doctors in New York have successfully cured patients using a revolutionary gene-editing…
CONGRESS PASSES FISCAL YEAR 2026 FUNDING PACKAGE WITH BIG WINS FOR THE SICKLE CELL DISEASE COMMUNITY
In early February, Congress finally advanced, and the President signed into law, a funding package for federal programs for fiscal year (FY) 2026, which runs through September 30…
Nigerians mourn as first class graduate who battled sickle cell dies
Nigerians have taken to social media to mourn the death of first class graduate and sickle cell advocate Anisa Ishaq-Balogun, whose passing has triggered an outpouring of tributes…
Modern treatment cures Pee Dee siblings from sickle cell
FLORENCE, S.C. (WBTW) — Two Pee Dee siblings are officially cured of sickle cell disease after more than a decade of living with the genetic blood disorder. Ashanti and Dontrell…