Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Gene Therapy and CRISPR-based Intervention in Sickle Cell Anemia
ABSTRACT: Sickle cell anemia is a severe inherited blood disorder caused by a mutation in the beta globin gene, leading to the formation of abnormal hemoglobin S and deformation…
Doctors More Likely to Use Negative Terms for Sickle Cell Patients
Sickle cell patients are more likely than other patients to have negative descriptions in their medical charts, such as “noncompliant” and “noncooperative,” according to a new…
Learn, Connect, and Share: A Day for the Sickle Cell Community
The Haemoglobinopathy Coordinating Centre (HCC) for the North of England is thrilled to invite you to our rescheduled Sickle Cell Patient Event! After having to postpone last…
- Clinical Trials and Researchpmc.ncbi.nlm.nih.gov
Movement behavior in adults with sickle cell disease compared to healthy adults: a cross-sectional study
Abstract Background Sickle cell disease (SCD) is one of the most common monogenic disorders in the world. Patients with SCD have chronic hemolytic anemia and experience episodic…
AI Reveals Negative Labels in Medical Records for Sickle Cell Patients
WEDNESDAY, April 15, 2026 (HealthDay News) —For many patients with sickle cell disease, a trip to the emergency room has an unwanted side-effect: In their search for relief from…
Evaluation of Implementation of Newborn Screening for Sickle Cell Disease Program in Selected Hospitals in Dar es Salaam, Tanzania
Department of Development Studies, School of Public Health and Social Sciences, Muhimbili University of Health and Allied Sciences, Dar es Salaam P.O. Box 65001, Tanzania 2 Sickle…
An Ayurvedic management of the Sickle Cell Anaemia: A Case Study
Abstract Sickle Cell Anaemia is a genetic disease-causing high morbidity and mortality. Quality of life hampers due to its chronic nature and painful crisis. Permanent cure is not…
Immune Imbalance in Sickle Cell Anemia: Flow Cytometric Insights Into Regulatory T Cells and Neutrophil Dynamics
ABSTRACT Objective To investigate immunophenotypic alterations in regulatory T cells (Tregs) and neutrophil dynamics in adult sickle cell anemia (SCA) patients during painful…
Individuals Living with Sickle Cell Disease in Sub-Saharan Africa Face Substantial Barriers to Managing Their Condition
Patients in sub-Saharan Africa less likely to know details about their disease variant, use over-the-counter medications, and go to the hospital for pain crises (WASHINGTON — Apr…
Sub-Saharan Africa patients report far lower sickle cell medication use, survey finds
Individuals living with sickle cell disease in sub-Saharan Africa face disparities in treatment and health care access when compared with those in other low- and middle-income…
Bias in sickle cell care may be tied to opioid stigma, new study finds
Clinician bias toward people with sickle cell disease (SCD) may be tied to stigma around opioid use, rather than race or chronic pain alone, a new study suggests. “Although…
Michigan’s first commercially available sickle cell disease gene therapy patient: “A huge blessing,” says 24-year-old Southfield college student
Detroit – Southfield college student Chantez Sanford Jr. said he wasn’t scared to be the first patient in Michigan to receive a novel, new, commercially available gene therapy to…