Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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Sickle cell disease care is unevenly distributed across regions in New York State
Sickle cell disease (SCD) is the most common inherited blood disorder in the United States. Approximately 10 percent of people with SCD in the US live in New York State, with the…
Gene based therapy for sickle cell disease in low and middle income countries insights from the Gambia
Article summary Sickle Cell Disease (SCD) poses a significant health challenge in low- and middle-income countries, particularly in sub-Saharan Africa, where access to effective…
5K Charity Run: Post Marathon Shake Out (MS & Sickle Cell Awareness)
Overview Join our virtual 5K Charity Run to raise awareness for MS & Sickle Cell, plus a chill post-run shakeout! 5K Charity Run: Post Marathon Shake Out Get ready to move and…
Kidney Function Decline in Sickle Cell Disease: Associations with Renin-Angiotensin System Inhibitors
Abstract Key points: Renin-angiotensin system inhibitor use was not associated with slowed GFR decline in sickle cell disease. This null association did not change after excluding…
Experts call for urgent action on rising sickle cell burden in Nigeria, Africa
Health experts and medical researchers have urged swift and unified efforts to tackle the rising impact of sickle cell disease in Nigeria and throughout Sub-Saharan Africa. They…
Newborn screening results for sickle cell disease from the ASH Consortium on Newborn Screening in Africa (CONSA)
The Consortium on Newborn Screening in Africa (CONSA), launched by the American Society of Hematology in 2020, is designed to initiate and expand sustainable newborn screening…
Geographic and Temporal Differences in Sickle Cell Disease Hospitalizations in New York State
Abstract Importance: Sickle cell disease (SCD) disproportionately affects racial and ethnic minority groups in the US and is associated with high levels of morbidity and health…
Long Island has a ‘high burden’ for a potentially fatal blood disorder: new study
About 100,000 Americans have sickle cell disease (SCD), the most common inherited blood disorder in the US. Roughly 10% of patients reside in New York State, with the majority…
Study finds regional differences in sickle cell disease in New York state
Sickle cell disease (SCD) is the most common inherited blood disorder in the United States. Approximately 10% of people with SCD in the US live in New York State, with the…
BMC Researcher Aims to Build More Options, Access for Sickle Cell Disease Treatment
Sickle cell disease (SCD) is one of the most common inherited blood disorders worldwide, impacting millions of people globally and most commonly affecting individuals of African…
Hydroxyurea Optimisation in Sickle Cell Disease (PHOENIX-NG)
The wide interindividual variability in clinical response to hydroxyurea therapy in the management of sickle cell disease has limited its use. These variabilities have been linked…
Sickle Cell crisis: Stakeholders demand urgent policy action
Key stakeholders in Nigeria’s health and research sectors have raised fresh alarm over the deepening sickle cell crisis, calling for urgent, coordinated policy action to translate…