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Sickle Cell Disease news and research updates

Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.

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  1. News

    Health experts urge urgent action on sickle cell in Nigeria, Africa

    Health professionals and researchers in the health sector have called for urgent, coordinated action to address the growing burden of sickle cell disease in Nigeria and across…

  2. News People

    Silver Spring Woman Becomes First Adult Sickle Cell Disease Patient in Maryland to Receive FDA-Approved Gene Therapy

    A 41-year-old Silver Spring woman who has endured debilitating pain crises and frequent hospitalizations throughout much of her life as the result of sickle cell disease has been…

  3. Determinants of clinical severity in children with sickle cell disease and confirmed asthma

    Abstract Background Asthma is a frequent comorbidity in children with sickle cell disease and has been associated with an increased risk of acute complications, particularly…

  4. News

    New study links sickle cell anemia to lower ovarian reserve in women

    Women with sickle cell anemia (SCA), the most common and severe form of sickle cell disease (SCD), have significantly lower ovarian reserve relative to women without SCA and with…

  5. News

    Advanced gene editing ‘promising’ for sickle cell disease, but access challenges remain

    Key takeaways: Two studies highlight the potential of gene editing for sickle cell disease treatment. Despite increasing evidence of efficacy, high costs and manufacturing…

  6. News

    Etavopivat Reduces VOCs and Boosts Hemoglobin in Sickle Cell Disease

    Topline data were announced from a phase 3 trial evaluating etavopivat in adults and pediatric patients with sickle cell disease (SCD). Etavopivat is a once-daily, oral pyruvate…

  7. Business

    Sickle Cell Disease Clinical Trial Pipeline Shows Potential with Active Contributions from 55+ Key Companies | DelveInsight

    DelveInsight’s “Sickle Cell Disease Pipeline Insights 2026” report provides comprehensive insights about 55+ companies and 60+ drugs in the Sickle Cell Disease Competitive…

  8. Multidrug Toxicity During Acute Painful Crises in Sickle Cell Diseases

    Abstract Background: Hydroxyurea and red blood cells (RBC) transfusions prolong survival in sickle cell diseases (SCD). Methods: All patients were included. Results: We studied…

  9. Fundraising Events

    Titi's fundraiser for The Sickle Cell Society

    21 YEARS HAS GONE BY SO QUICKLY ... Thank you so much for taking the time to visit my page. I will be taking part in London Marathon again and will be raising awareness and funds…

  10. Decoding thalassemia and sickle cell disease: advances in molecular technologies for comprehensive variant detection

    Abstract Thalassemia and sickle cell disease are inherited hemoglobinopathies caused by pathogenic variants in the globin genes and represent a major global health burden. Despite…

  11. An Investigation comparing clinicians’ knowledge of Sickle Cell Disease

    Introduction: Sickle Cell Disease (SCD) is a common inherited haemoglobinopathy with significant oral and systemic implications. Despite its prevalence in multi-ethnic populations…

  12. HSCT Shows Curative Potential in Adults With Sickle Cell Disease

    Hematopoietic stem cell transplantation (HSCT) is both possible and effective in adult patients with sickle cell disease (SCD), according to a retrospective single-center study…