Sickle Cell Disease news and research updates
Research readouts, treatment and access decisions, and community updates for people living with sickle cell disease and the people who care for them — each one dated, with a link to the original source where there is one.
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World Sickle Cell Day: India’s push toward early detection and better care
On World Sickle Cell Day, experts are highlighting that the fight against sickle cell disease depends on more than treatment alone- it requires early diagnosis, wider screening…
Sickle Cell, Gene Therapy, and the Limits of Medical Triumph
Gene therapy has given sickle cell disease what medicine has long promised but rarely delivered: the possibility of a cure. Yet the slow uptake of Casgevy and Lyfgenia shows that…
India Will Eradicate Sickle Cell Disease Ahead of 2047 Target, Says President Murmu
Indian President Droupadi Murmu , on the occasion of World Sickle Cell Day 2026 , today expressed confidence that the country can eradicate sickle cell disease well before the…
India's Sickle Cell Anemia Burden: Why Certain Regions And Communities Are More Affected
Sickle Cell Disease (SCD), commonly known as sickle cell anemia , is one of the most common inherited blood disorders in India. It occurs when an individual inherits an abnormal…
Aflac general counsel: Georgia lawmakers took a crucial step forward on sickle cell disease – but there’s more work to be done
Audrey Boone Tillman is Senior Executive Vice President and General Counsel of Aflac Incorporated, where she directs the Fortune 500 company’s Legal division globally and oversees…
Normalise conversations to rid stigma against sickle cell disease: Doctors
Bengaluru: For nearly a decade, a girl with sickle cell disease was taken to hospitals only during painful emergencies while her family avoided regular treatment for the inherited…
Sickle cell disease enters the era of gene therapy, but cures don't come cheaply
New gene therapies offer potential cures for sickle cell disease, but multimillion-dollar costs raise major questions about access and equity. Sickle cell disease has long been…
Mitapivat raises hemoglobin levels in Phase 3 sickle cell disease trial
Agios Pharmaceuticals ’ medication mitapivat rapidly increased levels of the oxygen-carrying protein hemoglobin in patients ages 16 and older with sickle cell disease (SCD), while…
Addressing access and equity in sickle cell disease care
Sickle cell disease (SCD) is a genetic blood disorder that causes red blood cells to form in a crescent moon shape. These sickled blood cells can stick together and prevent oxygen…
Patient reflects on decades of progress in sickle cell treatment
Audrey Smith, 78, was diagnosed with sickle cell disease at a young age. She has received care at Johns Hopkins for more than 20 years. "I'm grateful for the concern and the love…
New $5.1 Million Grant Will Help Doctors Better Understand and Treat Sickle Cell Pain
SSRI affiliate has secured major federal funding to study why sickle cell disease patients experience pain so differently, and what that means for their care. The Genomics, Race…
As World Sickle Cell Day approaches, Red Cross encourages blood donation to support patients living with the disease
When Brandis Clayton Virgial and Halema Townsend first met through Zeta Phi Beta Sorority in 2023, they quickly bonded over their shared commitment to service. During a private…