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When 9-year-old Jeremy Brown is in pain, it feels like he is being stabbed, while the pain experienced by Deborah Oliver, 40, is like a hundred simultaneous charley horses.
Brown, of Bridgeport, and Oliver, of New Haven, have sickle cell disease (SCD), a genetic blood disorder that causes excruciating pain, life-threatening complications and a shortened life expectancy. Almost one-half of sickle cell patients die in their 40s.
The disease affects some 100,000 Americans, about one in 365 African Americans and one out of 16,300 Hispanics; and in lesser numbers, people with Middle Eastern, Indian, Caribbean and Mediterranean ancestries. An estimated 2,000 people in Connecticut have SCD.
But the disease—discovered over 100 years ago—receives little research, funding and attention.
education & researchA randomized controlled trial comparing two vaso-occlusive episode (VOE) protocols in sickle cell disease (SCD)Limited evidence guides opioid dosing st...
people & placesUgochi O. Ogu, MDDr. Ogu currently serves as an Assistant...
education & researchHealth Care Utilization Trajectories and Associated Factors for Transitioning Adolescents/Young Adults with Sickle C...Limited research had explored health car...
news & eventsPfizer rare disease introduces Council for Change to further help SCD patientsFollowing a report earlier thi...
people & placesHope for SCDHope for SCD strives to bridge the gap b...
videos & visualsIU Nurse Invents Medical Device for People With Sickle Cell Diseasehttps://www.youtube.com/watch?v=TjE3Urth...
Community CenterSickle Cell Disease: Data Saves Lives“One minute I’d be fine, the next mi...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.