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Sickle cell cure is real, as this Kansas patient proves
Intense pain. Fatigue. Repeated infections, emergency room visits and hospitalizations.
Desiree Ramirez endured them often — until she became the first adult cured at a Kansas hospital of sickle cell disease.
Bone marrow stem cells donated by a stranger rescued Ramirez at age 23. Now, a year past transplant, with follow-up doctor’s office visits slowly receding, she finds herself eagerly anticipating a normal life, one without the inherited blood disorder that affects 70,000 to 100,000 Americans, mostly people of African heritage.
education & researchFrom total blood exchange to erythrocytapheresis and back to treat complications of sickle cell diseaseErythrocytapheresis is an important proc...
videos & visualsFighting Through Our Pain TV With Thomas J. Harrington MDhttps://www.youtube.com/watch?time_conti...
education & researchFertilityIf you might want to have children in th...
news & eventsSolution to 50-year-old mystery could lead to gene therapy for common blood disordersIn a landmark study that could lead to n...
videos & visualsSisterly bond behind sickle-cell curehttps://www.youtube.com/watch?v=9S-xVGsR...
news & eventsMARAC Advisory Statement: Gene Therapy & Bone Marrow TherapiesPlease note: A previous version of this ...
news & eventsSurprise of a lifetime: Devin McCourty gives away two Super Bowl LIII ticketsBrunel Etienne says one his childhood dr...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.