Rare Disease Week on Capitol Hill | oneSCDvoice
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Rare Disease Week on Capitol Hill

Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators.

In 2019, the week of events will start with the Rare Disease Documentary Screening and Cocktail Reception on Sunday evening.

All events are free for patients, caregivers and other advocates but advance registration is required for each event. Please sign up for our email list or check this page regularly.


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