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Trusted Resources: News & Events
Latest announcements and gatherings
Rare Disease Legislative Advocates (RDLA) organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. Meetings will take place virtually on March 3 and 4, 2021. The RDLA team also helps to prepare advocates for their meetings, provides legislative resource materials, and hosts pre-meeting training webinars.
The Rare Across America training webinar will take place on February 4, 2021 at 2:00 pm ET, register here.
Special Social Media training webinar will take place on February 22, 2021.
This event has ended.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.