Google
Trusted Resources: News & Events
Latest announcements and gatherings
Rare Across America Training Webinar and Social Media Training Webinar
Rare Disease Legislative Advocates (RDLA) organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. Meetings will take place virtually on March 3 and 4, 2021. The RDLA team also helps to prepare advocates for their meetings, provides legislative resource materials, and hosts pre-meeting training webinars.
The Rare Across America training webinar will take place on February 4, 2021 at 2:00 pm ET, register here.
Special Social Media training webinar will take place on February 22, 2021.
This event has ended.
+myBinderRelated Content
-
Foundation For Sickle Cell Disease ResearchThe Foundation for Sickle Cell Disease R...
-
Jane A. Little, MDJane Little, MD, is a Professor of Medic...
-
Chavis Patterson, PhDDr. Chavis Patterson is a licensed Clini...
-
Music therapy helps relieve pain in adults with sickle cell disease, pilot trial suggestsMusic therapy can help ease pain in ad...
-
Managing Sickle Cell Disease as an AdultPeople with sickle cell disease (SCD) ar...
-
Pain and opioid use after reversal of sickle cell disease following hematopoietic stem cell transplantPain is the most common symptom of sickl...
-
Healthy red blood cells owe their shape to muscle-like structuresRed blood cells are on a wild ride. As t...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.