DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
compose your message
email sent successfully
Trusted Resources: News & Events
Latest announcements and gatherings
PROFILE: Asiata, 90-year-old sickler who has 5 children and has gone to Mecca 13 times
Asiata Onikoyi-Laguda, the woman believed to be the oldest sickle cell patient in the world, celebrated her 90th birthday on November 1, 2015 – a feat that is clearly in defiance of science.
Onikoyi was born in November 1925, at a time when the average life expectancy of people living with sickle cell disorder was just five years.
Onikoyi, who was born in the same year as Margaret Thatcher, first female British prime minister; Malcolm X, civil rights activist, and Idi Amin Dada, Ugandan dictator, older than ‘all’ known (documented) sickle cell patients in the world.
education & researchMaternal Sickle Cell Disease and Twin Pregnancy: A Case Series and Review of the LiteratureObjectives: Maternal sickle cell diseas...
Community CenterSending a Child With Sickle Cell Disease off to CollegeSickle cell disease afflicts about 100,0...
education & researchSickle Cell Disease, More Than Just Pain: The Mediating Role of Psychological SymptomsObjectives: Perceived stress is associa...
Community CenterAn Almost-Love StoryI left after three hours, but after that...
Community CenterT-Boz: Vote on Tuesday Like Your Health Depends on ItAs a mother, I know that I have a respon...
news & events7th Annual Leadership Summit and General Assembly of Patients, Caregivers & CBOsThe Sickle Cell Community Consortium (SC...
Community CenterDanceBlue inspired UK alumnus to study and fight health disparitiesJordan McDowell, a 2014 alumnus of the U...
send a message
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.