DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
Trusted Resources: News & Events
Latest announcements and gatherings
Asiata Onikoyi-Laguda, the woman believed to be the oldest sickle cell patient in the world, celebrated her 90th birthday on November 1, 2015 – a feat that is clearly in defiance of science.
Onikoyi was born in November 1925, at a time when the average life expectancy of people living with sickle cell disorder was just five years.
Onikoyi, who was born in the same year as Margaret Thatcher, first female British prime minister; Malcolm X, civil rights activist, and Idi Amin Dada, Ugandan dictator, older than ‘all’ known (documented) sickle cell patients in the world.
education & researchEstimated Life Expectancy and Income of Patients With Sickle Cell Disease Compared With Those Without Sickle Cell Di...Importance: Individuals with sickle cel...
videos & visualsDante’s Journey: Living With Sickle Cellhttps://www.youtube.com/watch?v=c3LGJRNW...
education & researchBeliefs about hydroxyurea in youth with sickle cell diseaseBackground: Hydroxyurea reduces complic...
news & eventsRoland B. Scott Memorial Symposium: I Want Somebody to LoveRoland B. Scott Symposium on Sickle Cell...
videos & visualsFoods to Help with Sickle Cellhttps://s-media-cache-ak0.pinimg.com/ori...
videos & visualsSickle Cell Disease – The ‘Invisible’ Illnesshttps://www.youtube.com/watch?v=OXFWezTx...
news & eventsIncreasing Appointment Attendance: A Vital Opportunity to Improve Health Outcomes for Those Living with Sickle Cell ...Sickle cell disease (SCD) affects approx...
send a message
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.