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Today, 100,000 Americans live with sickle cell disease (SCD). The genetic disease, named for the sickle-shaped red blood cells it causes, leads to severe pain, serious infections, and organ damage. The severity of SCD varies, with many people facing a shortened life expectancy and a host of recurring, debilitating, and expensive health problems.
This condition also disproportionately affects Black and Brown Americans, with an estimated 1 in 365 Black Americans and 1 in 14,000 Hispanic Americans suffering from it. As President, I am committed to supporting those who have been hit the hardest by SCD. And during National Sickle Cell Awareness Month, our Nation reaffirms our commitment to improving the quality of life and health outcomes for all individuals living with SCD.
Now, therefore, I, Joseph R. Biden Jr., President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim September 2021 as National Sickle Cell Awareness Month.
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people & placesKim Smith-Whitley, MDDr. Smith-Whitley is the director of the...
news & events2019 Cure Sickle Cell Initiative Annual Forum: Accelerating Scientific PrioritiesTuesday, November 19 - Thursday, Novembe...
Community CenterSuccessful Gene Therapy for Sickle Cell DiseasePrior to this report, the only curative ...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.