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The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved about $18 million to fund two studies comparing different ways to manage the transition of people with sickle cell disease from pediatric to adult care.
Although children with sickle cell disease generally receive the care they need to manage their condition, the transition to adult care can be hazardous. Many primary care clinicians who treat adults are unfamiliar with caring for this rare condition, and patients can find it challenging to access care across specialists. Losing a source of care, such as pediatric specialty care, decreases the likelihood that young adults with sickle cell disease will receive preventive care and screening visits, and it increases the chance they will seek emergency department care when painful symptoms flare.
people & placesWake Forest University Sickle Cell Center of ExcellenceWake Forest School of Medicine has serve...
education & researchSensorineural Hearing Loss in Children With Sickle Cell DiseaseIntroduction: Sensorineural hearing los...
people & placesZ. Jim Wang, PhDDr. Wang is a professor of pharmacology ...
people & placesCitizens for Quality Sickle Cell CareThe New England Sickle Cell Institute at...
education & researchEmergency Guide: When to see the doctorIt is very important that every person o...
people & placesLaura De Castro, MDLaura M. De Castro MD, MHSc, is an Assoc...
videos & visualsHow Sickle Cell Anaemia Impacts Families and How We Can Helphttps://www.youtube.com/watch?v=5GUiuXQ9...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.