DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
compose your message
email sent successfully
Trusted Resources: News & Events
Latest announcements and gatherings
NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19
At this time of crisis and with the health, safety and well-being of patients and caregivers as its top priorities, the National Organization for Rare Disorders (NORD®) today launched its COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare community affected by the COVID-19 pandemic. The program provides financial relief that may be utilized to support critical, non-medical needs.
“Providing financial assistance to help meet the unique needs of the rare disease community has been central to our mission for over 37 years,” said Jill Pollander, RN, MSN, Director of Patient Services for NORD. “The NORD COVID-19 Critical Relief Program enables us to provide desperately needed support to rare disease community members whose lives have been directly impacted by the current pandemic.”
Through the new program, NORD will provide financial assistance to eligible patients, covering up to $1,000 annually. It provides funds for essential expenses including, but not limited to unexpected utility expenses; cellular or internet service; emergency repairs to car, home or major appliances; and rent or mortgage payment assistance. Interested rare disease patients and families can reach out to NORD to find out if they meet eligibility requirements.
For more information on the NORD COVID-19 Critical Relief Program and to apply, please contact NORD by telephone at 203.242.0497, via email at COVID19assistance@rarediseases.org, or visit rarediseases.org. To show your support, please consider making a donation to the program so that even more people can be helped. Finally, to stay informed, the NORD COVID-19 resource center presents information and links relevant to the rare community during this pandemic.
videos & visualsSCDAA’s Response to the COVID-19 Pandemichttps://www.youtube.com/watch?v=ikKWJoFb...
news & eventsIn Support of Rare Disease Patients Impacted by COVID-19, NORD Launches Premium and Limited Medical Relief ProgramUnited with more than 25 million America...
news & eventsRumor, Disparity and Distrust: Why Black Americans Face an Uphill Battle Against COVID-19AFTER TESTING POSITIVE for COVID-19, su...
education & researchCOVID-19 Vaccine: Key MessagesYou can help stop the pandemic by gettin...
news & eventsCOVID-19 Health Alert for People With Sickle Cell Disease and Their Caregivers (Adapted for Sub-Saharan Africa)April 1, 2020 - COVID-19, the coronaviru...
videos & visualsSickle Cell Patient Receives COVID-19 VACCINE!https://www.youtube.com/watch?v=CR6fTwRF...
videos & visualsYou Should Get a COVID-19 Vaccine – Portuguesehttps://www.youtube.com/watch?v=t8UywR9x...
send a message
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.