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This summer, 34-year-old Victoria Gray became the first person in the U.S. to have a gene editing therapy as treatment for sickle cell disease. “It’s a very big deal for me,” Gray said in a national media interview after learning the groundbreaking treatment was working. “It’s the change I’ve been waiting on my whole life.”
Gray, a Black wife and a mother of three from Mississippi, had been living with the complications of the inherited blood disorder that disproportionately affects African Americans for her entire life.
CRISPR is a new technique that involves cutting out a tiny piece of the mutation or defective gene that causes sickle cell disease in the hopes that the corrected gene will then work to make normal hemoglobin (a protein in red blood cells) instead of the sickle-shaped hemoglobin that gives the disease its name.
education & researchCurative Therapies for Sickle Cell DiseaseBackground: Sickle cell disease (SCD) i...
news & eventsSickle Cell Disease Virtual Forum: Historically Black Colleges and Universities 16-Day ChallengeYou’re invited to the Sickle Cell Dise...
education & researchHow to Prepare Your Family in Case COVID-19 Spreads in Your CommunityHere is what you can do to prepare your ...
people & placesPat Corley, RNPat Corley is a retired nurse coordinato...
Community CenterPlaying through sickle cellEighteen minutes in with no break, Billy...
Community CenterToday’s Faces of Sickle Cell Disease: Tesha SamuelsTesha Samuels was diagnosed with SCD at ...
people & placesCarlton Haywood, Jr., PhD, MABorn January 26, 1976, in Atlanta, Georg...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.