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“We want to have a nation in which the accidents and circumstances of our birth aren’t determining our fate,” he told a room of reporters a few days later. “And if we’re born with a particular disease or a particular genetic makeup that makes us more vulnerable to something; that that’s not our destiny, that’s not our fate—that we can remake it.”
They were the words Shakir Cannon had been waiting his whole life to hear. For 32 years he had been living with a genetic disorder, sickle cell disease, which predominantly affects African Americans. He managed it the same way people had been doing for decades: He got monthly blood transfusions and took medications for the crippling bouts of pain in his bones and joints. He didn’t have the money for a bone marrow transplant. But he dreamed that one day there’d be an affordable, universal cure—and he was a vocal advocate for research to make that a reality.
people & placesMarina Cavazzana, MD, PhDMarina Cavazzana is a pediatrician, Prof...
education & researchTransition Toolkit – Sickle Cell Disease CoalitionWhat is transition? Transition is when ...
people & placesThe Brookdale University Hospital and Medical CenterThe Comprehensive Pediatric Sickle Cell ...
news & eventsCalifornia’s Stem Cell Agency Invests in Stem Cell-Based Therapies Targeting Sickle Cell Disease and CancerThe California Institute for Regenerativ...
people & placesRita Paschal, MDDr. Paschal is Associate Professor of me...
education & researchFetal Haemoglobin in Sickle-cell Disease: From Genetic Epidemiology to New Therapeutic StrategiesSickle-cell disease affects millions of ...
people & placesUniversity of Pittsburgh School of MedicineThe University of Pittsburgh School of M...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.