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Initiative helping sickle cell patients
It doesn’t happen daily, but 11-year-old Billie Robinson experiences random pain. Sometimes it just goes from one part of his body to another.
At 9 years old, Jordan Dickey also endures pain. It flares up when it’s too hot or too cold outside and prevents him from playing with friends outside at recess.
When Robert Ward wakes up for class at Purdue University Fort Wayne, he feels a soreness in his knees. At 19 years old, he said the pain is starting to affect him more.
While all three look healthy from the outside, they’ve been battling sickle cell disease from an early age.
videos & visualsHow Sickle Cell Anaemia Impacts Families and How We Can Helphttps://www.youtube.com/watch?v=5GUiuXQ9...
people & placesRuth Nankanja, BAForty- three year old Ruth Nankanja is t...
news & eventsRARE Drug Development SymposiumThe RARE Drug Development Symposium is a...
videos & visualsSickle Cell Disease: Treatments – PAINWeekhttps://www.youtube.com/watch?v=llqCdRNK...
people & placesSickle Cell Anemia Awareness of San Francisco (SCAASF)Sickle Cell Anemia Awareness of San Fran...
people & placesSickle Cell Disease Association of Florida, Inc (SCDAF)The Sickle Cell Disease Association of F...
Community Center@juliemakaniScientist|Doctor - Sickle Cell Disease f...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.