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The Department of Pediatrics and Child Health in the Howard University College of Medicine has received a $42,000 grant from the Walter Brownley Trust Bank of America, N.A., Trustee to support children with sickle cell disease and their families. There are approximately 1,500 children and youth with sickle cell disease in the Washington, D.C. region.
The project supported by the grant, entitled “LIFE (Learning Is Fundamental for Everyone) with Sickle Cell Disease,” will focus on increasing educational and other support services for school-age children with sickle cell. Services include education and advocacy training, transportation assistance, special informational workshops for families, and distribution of other needed resources.
“Most sickle cell disease patients have low socioeconomic status, lack social support, and face many barriers for achieving optimal medical care and educational achievement,” says Dr. Sohail Rana, professor of pediatrics in the College of Medicine and lead administrator of the “Life” project.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.