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According to new research, pediatricians recognize the importance of discussing the presence of sickle cell trait (SCT) in newborn screening, however, their confidence in how to discuss it is lacking. Lead investigator Corinna Schultz, MD, Department of Pediatrics, Sidney Kimmel Medical College of Thomas Jefferson University, Center for Cancer and Blood Disorders, Nemours Children’s Health explained that the conversation needs to continue beyond the initial screening results.
“They’re often discussing just that the child has sickle cell trait, and not necessarily talking about inheritance patterns, or potential medical complications, or reproductive decision making in the future,” she said in an interview with HCPLive.
The study which Schultz presented at the American Society of Hematology (ASH) Annual Meeting and Exposition, surveyed a large population of pediatricians and primary care physicians (PCPs) to evaluate the understanding of SCT in this setting.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.