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Latest announcements and gatherings
The Sickle Cell Community Consortium is pleased to announce the 2017 Leadership Summit & General Assembly of Advocates and Community-based organizations (CBOs). The Consortium is a 501(c)(3) not-for-profit collective of Sickle Cell Community-Based Organizations (CBOs), Community Partners, Sponsored Patient Organizations, Patient/Caregiver Advocates and Healthcare/Research Advisors- each dedicated to sickle cell advocacy, education, research, community awareness and patient support throughout the country.
The Consortium was created to provide an organizing arm to enable our communities to identify and address local and national needs. Patterned after the United Nations, and following a model of Collective Impact, we provide a platform to “amplify the power of the patient voice”. As part of this collaborative effort, we are excited to host the 2017 Leadership Summit and General Assembly, March 16-19, 2017 in Atlanta, Georgia. This meeting is open to the public. You are invited to join us as we continue to effect patient-powered change in our community.
news & eventsSickle Cell & Me: Survivor Discussion with Clarisse H. (Sickle Cell Survivor)The Lambda Epsilon Sigma Chapter of Sigm...
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videos & visualsRare Across America 2020 Training Webinarhttps://us02web.zoom.us/rec/play/uZcrJez...
news & eventsHemoglobinopathy Counselor Training Course – VIRTUALUPDATE! 2020 Hemoglobinopathy Counselor ...
news & eventsRare Disease Day – HomeRare Disease Day takes place on the last...
education & researchWarrior U Social Media Series: Sickle Cell Community ConsortiumSocial Media As A Tool for CBO Communit...
news & events‘Sickle Cell Speaks’ Campaign Raises Awareness with Aim of Eroding Stigmas, GBT and Partners SayIn partnership with community organizati...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.