• Join Today!

Become a member and connect with:

  • An Active Online Community
  • Articles and Advice on SCD
  • Help Understanding Clinical Trials

What it’s like to be 17 and living with sickle cell disease

Tre Adegoroye is 17 and was diagnosed with sickle cell disease at birth. The condition affects red blood cells and by the age of nine, Tre and his twin brother had both had strokes. Prodigy, the rapper from hip-hop duo Mobb Deep who passed away on Tuesday, also suffered from the disease.

The NHS has launched an appeal for black blood donors to come forward to treat patients of the disease, which is also the fastest growing genetic disorder in the UK.

Tre has been to hospital to receive a blood exchange, which is the term used for a full blood transfusion. Many sufferers need that on a regular basis to treat the condition. Tre has required 10 blood exchanges in the last six months, which is the equivalent of 120 units of blood or 120 separate blood donations from members of the public.