• Join Today!

Become a member and connect with:

  • An Active Online Community
  • Articles and Advice on SCD
  • Help Understanding Clinical Trials
patient education

A Parents’ Handbook for Sickle Cell Disease

key information

source: State of California Department of Health Services, Genetic Disease Branch

year: 2015

summary/abstract:

This is a parents handbook for sickle cell disease from The Virginia Sickle Cell Awareness Program. It contains:

-Parent Handbook Part I

-Parent Handbook Part II

Part I is relevant for parents with kids from birth to six years of age, and Part II is relevant for parents with kids of age six to eighteen years.

This handbook was developed in response to requests from parents of children with sickle disease for more detailed information that they could refer back to as needed. The parents’ role in early identification of infection and other problems is difficult yet so critical to the health of their child particularly during the first few years of life.

read more

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close