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patient education

Living well with Sickle Cell Disease – Self-Care Toolkit

key information

source: Centers for Disease Control and Prevention

year: N/A


What Is the Living Well With Sickle Cell Disease: Self-Care Toolkit? 

A toolkit is a collection of materials that can be used to help you to manage your health and keep track of important information regarding sickle cell disease (SCD). The Living Well With Sickle Cell Disease: Self-Care Toolkit has multiple uses. It is designed to help you and your caregivers with management of your disease, medical care, services, and health providers. The toolkit also will help communication between the many health providers and service providers that are involved with patient care.


Why Should I Use the Living Well With Sickle Cell Disease: Self-Care Toolkit?

Because many doctors are not familiar with SCD, it is very important for you to take an active role in managing your own care. To make important decisions, you need to know about SCD, understand your treatment options, and then make the best possible choices for your health. Using the tools provided in this toolkit will help you to monitor your health care and manage your disease.

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