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Part of Sickle Cell Disease on Somebody To Talk To

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Today's Faces of Sickle Cell Disease: Jennelle Stephenson

Jennelle Stephenson was diagnosed with SCD at birth, and it has been a challenging journey ever since. She has had pain episodes so intense that she temporarily lost mobility in…

Imported from onescdvoice.com

Patient Stories · Feelings and Experiences · Gene Therapy · Vaso-occlusive Crisis/Pain Crisis

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Jennelle Stephenson was diagnosed with SCD at birth, and it has been a challenging journey ever since. She has had pain episodes so intense that she temporarily lost mobility in her extremities. Most of her crises occur out of the blue, without warning. “Living with this disease is a scary, unpredictable rollercoaster. Every morning when I wake up, I have to plan my day as if I were going to go into crisis. Whatever I do and wherever I go, I have to make sure that I have a plan and the proper supplies if a crisis were to occur.” Despite the challenges, Stephenson is currently pursuing a master’s degree in health care administration. Related story
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