Google
Trusted Resources: Community Center
Online groups, photo galleries and blogs
People With Sickle Cell Are Seen as Hypochondriacs or Drug Addicts. Even a Nine-Year-Old Has to Scream to Get the Care They Need
Nine year old Jacob has sickle cell disease. His mother Sheree Hall doesn’t just understand the findings from the sickle cell patient experience survey, she lives them. As a working mum of two, navigating the healthcare service as a carer of a child with a long term condition, many of the experiences and challenges identified in our recent report are all too familiar.
In the below interview Sheree shares her day to day experiences of sickle cell disease, how it impacts family life and what more support and service improvements would mean to her personally. Her story is arresting, enlightening and highlights the importance of capturing and acting on people’s experiences in order to improve care.
+myBinderRelated Content
-
Reproductive Health CHOICES for Young Adults with Sickle Cell Disease or Trait: Randomized Controlled Trial Outcomes...Interventions to assist reproductive hea...
-
How a Man and Woman, Both with a Sickle Cell Anemia Mutation, Had a Healthy ChildA man and woman who are both carriers of...
-
Sickle Cell and I: A Long RoadRecently, I went to a Sickle Cell user g...
-
Understanding patterns and correlates of daily pain using the Sickle cell disease Mobile Application to Record Sympt...Patients with sickle cell disease (SCD) ...
-
Sickle Cell Disease Coalition (SCDC)https://www.youtube.com/watch?v=oQP-Uq0B...
-
How Does Sickle Cell Disease Affect Fertility and Reproductive Health?https://www.facebook.com/cayennewellness...
-
‘Every Time It’s A Battle’: In Excruciating Pain, Sickle Cell Patients Are Shunted AsideAmy Mason had toughed it out for hours o...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
