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You Belong Here. Embrace Your Sickle Cell
Let’s not just campaign for Sickle cell prevention; let’s be equally forceful in embracing the kids who are already here!
Some call it a disease; some compare it to Aids and cancer. In that, we are constantly telling sickle cell carriers that they’re dying or going to die soon, but they are not. Stop the culture of death around sickle cell! We raise them in guilt and fear. We make their condition a secret. We don’t want anyone knowing about it, except for a very small circle of people that we “trust”, because we feel guilty, ashamed, or scared.
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Community CenterMKSAP: 24-Year-Old Woman With Sickle Cell AnemiaA 24-year-old woman undergoes routine ev...
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news & eventsThe impact of rare disease on family caregiversFindings from a first-of-its-kind nation...
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news & eventsMinority Health Counts: Building a More Equitable Community SummitBy Supporters of Families with Sickle Ce...
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Community CenterThe Ways I Made Hydration a HabitWhen I was younger and didn’t have a f...
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education & researchPediatric to Adult Transition in Sickle Cell Disease: Survey Results From Young Adult PatientsBackground/Aims: We surveyed sickle cel...
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education & researchHABIT, a Randomized Feasibility Trial to Increase Hydroxyurea Adherence, Suggests Improved Health Related Quality of...Objectives: To examine the effect of a...
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