DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
You Belong Here. Embrace Your Sickle Cell
Let’s not just campaign for Sickle cell prevention; let’s be equally forceful in embracing the kids who are already here!
Some call it a disease; some compare it to Aids and cancer. In that, we are constantly telling sickle cell carriers that they’re dying or going to die soon, but they are not. Stop the culture of death around sickle cell! We raise them in guilt and fear. We make their condition a secret. We don’t want anyone knowing about it, except for a very small circle of people that we “trust”, because we feel guilty, ashamed, or scared.
+myBinderRelated Content
-
education & researchI Believe in Therapy Campaign Presentation – 2023One unifying message in the sickle cell ...
-
education & researchLiving Well With Sickle Cell Disease: Self-Care ToolkitWhat Is the Living Well With Sickle Cell...
-
Community CenterPeople With Sickle Cell Are Seen as Hypochondriacs or Drug Addicts. Even a Nine-Year-Old Has to Scream to Get the Ca...Nine year old Jacob has sickle cell dise...
-
Community CenterAdulting is especially difficult for youth with special health care needsThere are approximately 4.3 million adol...
-
Community CenterSickle Cell Disease in the Emergency Department: Confronting Barriers to Care“You’re too pretty to have a disease...
-
Community CenterSending a Child With Sickle Cell Disease off to CollegeSickle cell disease afflicts about 100,0...
-
Community Center‘Every Time It’s A Battle’: In Excruciating Pain, Sickle Cell Patients Are Shunted AsideAmy Mason had toughed it out for hours o...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.