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You Belong Here. Embrace Your Sickle Cell
Let’s not just campaign for Sickle cell prevention; let’s be equally forceful in embracing the kids who are already here!
Some call it a disease; some compare it to Aids and cancer. In that, we are constantly telling sickle cell carriers that they’re dying or going to die soon, but they are not. Stop the culture of death around sickle cell! We raise them in guilt and fear. We make their condition a secret. We don’t want anyone knowing about it, except for a very small circle of people that we “trust”, because we feel guilty, ashamed, or scared.
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education & researchUnderstanding patterns and correlates of daily pain using the Sickle cell disease Mobile Application to Record Sympt...Patients with sickle cell disease (SCD) ...
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videos & visualsWith Cincinnati Children’s Hospital – What is Sickle Cell Trait?https://www.youtube.com/watch?v=MDepyJP5...
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videos & visualsSickle cell warrior documentaryhttps://www.youtube.com/watch?v=ZxC4vtN2...
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news & eventsOpioid Abuse Backlash Could Hurt Sickle Cell Patients’ Medication Needs, Some FearWith drug overdoses now the leading caus...
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videos & visuals5 tips on how I manage sickle cell diseasehttps://www.youtube.com/watch?v=4lNPRp2M...
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