Community stories archive

Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.

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118 pages in Community stories

Community storiesSeptember 21, 2018
The Sickle Cell Podcast
Community Interviews · disease awareness/support
Community storiesAugust 30, 2018
Screening for sickle cell and beta thalassaemia
Patient Stories · HbS beta thalassemia · Newborn Screening · Prenatal Screening · SCD Newborn Screening Program · Screening · Sickle Cell Trait Testing
Community storiesAugust 30, 2018
Sickle Cell Disease in the Emergency Department: Confronting Barriers to Care
sickle cell disease · sickle cell · cell disease · sickle · cell · Patient Stories · Emergency Departments/Hospitalizations · Wait Time
Community storiesAugust 16, 2018
The Warrior Series
Patient Stories · courage and inspiration
Community storiesJune 19, 2018
Ep. 30 Jordin Jackson Conversation
Patient Stories · disease awareness/support · Resources/Patient Support
Community storiesJune 19, 2018
You'd never know this 2-year-old has sickle cell anemia
Patient Stories · Parenting
Community storiesApril 17, 2018
Ayòbámi Adébáyò on how having the sickle cell trait inspired her bestselling debut
Community Interviews · Definitions · Disease Basics · Heterozygous · Sickle Cell Disease/Sickle Cell Anemia · Sickle Cell Trait/HbAS
Community storiesFebruary 21, 2018
DanceBlue inspired UK alumnus to study and fight health disparities
Patient Stories · Living with SCD/Quality of Life · Resources/Patient Support
Community storiesDecember 19, 2017
Adulting is especially difficult for youth with special health care needs
Patient Stories · Adolescent/Young Adult Transition · Caregiver · Living with SCD/Quality of Life · Psychosocial · Responsibility
Community storiesDecember 19, 2017
An Almost-Love Story
Patient Stories · Feelings and Experiences · Living with SCD/Quality of Life
Community storiesDecember 19, 2017
These people living with an invisible condition are doing their best to raise awareness about it
Patient Stories · Coping · Living with SCD/Quality of Life
Community storiesDecember 19, 2017
TLC's Tionne 'T-Boz' Watkins on Living With Sickle Cell Disease
Patient Stories · Feelings and Experiences · Living with SCD/Quality of Life