Community stories archive

Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.

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118 pages in Community stories

Community storiesNovember 16, 2023
Finding the right sickle cell disease care team
sickle cell · sickle · cell · Community Interviews · Emergency Departments/Hospitalizations · Finding the right doctor · HealthCare Issues/Services · Hematology · hospitals · Patient Transitions · Resources/Patient Support
Community storiesNovember 16, 2023
Four Solutions for Sickle Cell Disease Support
cell · Patient Stories · Emergency Departments/Hospitalizations · Finding the right doctor · HealthCare Issues/Services · Inadequate/Inappropriate Services · Patient Transitions
Community storiesOctober 24, 2023
The Ways I Made Hydration a Habit
Patient Stories · Dehydration · Fluid Intake/Hydration · Hydration
Community storiesAugust 31, 2023
The challenges of being a caregiver to my cousin with sickle cell
Caregiver Stories · Caregiver · Fatigue · Feelings and Experiences · Isolation · Knowledge/Health literacy · Responsibility
Community storiesAugust 31, 2023
The Rise and Fall of My Mental Health With Sickle Cell
sickle cell · sickle · cell · Patient Stories · dating · Depression/Mental Illness · Patient Transitions · Relationships · Romantic relationship
Community storiesJune 27, 2023
Cheat Codes: A Sickle Cell Podcast: International Legends of Sickle Cell - Professor Clarisse Lobo & Dr. Kleber Fertrin
sickle cell · sickle · cell · community · Community Interviews · disease awareness/support · patient advocacy · Resources/Patient Support
Community storiesJune 27, 2023
Cheat Codes: A Sickle Cell Podcast: Legends of Sickle Cell - Dr. Michael DeBaun & Shamonica Wiggins
sickle cell · sickle · cell · Community Interviews · disease awareness/support · Educational Support · patient advocacy
Community storiesFebruary 16, 2023
NFL's Tevin Coleman Opens Up About Daughter's Sickle Cell Journey: 'We Try to Uplift Her'
sickle cell · sickle · cell · Patient Stories
Community storiesJanuary 27, 2023
Tristan's Story
sickle cell · sickle · cell · Patient Stories
Community storiesSeptember 13, 2022
Bone Pain and Sickle Cell Disease
Community Interviews
Community storiesSeptember 13, 2022
Caregiving For a Spouse With Sickle Cell Disease
sickle cell · sickle · cell · Community Interviews
Community storiesSeptember 13, 2022
Sickle Cell and Finding Creativity
sickle cell · sickle · cell · Community Interviews