OneSCDvoice archive
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519 pages from 2018
Education resources
Caregiver Stress: Don't Forget Self-Care
Patient Education · CAREGIVER SUPPORT · Caregiver · Living with SCD/Quality of Life · Responsibility
Education resources
Caregiving Tips for Families of People With Disabilities
Patient Education · CAREGIVER SUPPORT · Caregiver · Living with SCD/Quality of Life
People
Dana LeBlanc, MD, MS
Healthcare Providers · Healthcare/Research · Hematology · Oncology · Pediatrics/Child Care
People
Gaurav Kharya MBBS, DNB, DCH
Healthcare Providers · Healthcare/Research · Hematology · Oncology · Pediatrics/Child Care
People
Howard Woolley, MAS
Community Advocates · HealthCare Issues/Services · Healthcare/Research · Research Funding
People
Julie A. Panepinto, MD, MSPH
sickle cell disease · sickle cell · cell disease · sickle · cell · Researchers · Healthcare/Research · Hematology · Pediatrics/Child Care
Dr. Panepinto serves as vice chair of value, department of pediatrics. Her research focus has been to integrate the perspective of the patient and family in the care of children…
People
Maria Hartleben, LCSW
Patient Support Professionals · disease awareness/support · patient advocacy · Resources/Patient Support
People
Patrick Woster, PhD
cell · Researchers · Healthcare/Research · pharmaceuticals
Professor Woster maintains an active research program that has been funded by several agencies, including the National Institutes of Health, the World Health Association and the…
Education resources
CDC grand rounds: Improving the lives of persons with sickle cell disease
Scientific Articles · QUALITY OF LIFE · Feelings and Experiences · Health Maintenance · Life Expectancy · Living with SCD/Quality of Life
Education resources
Development of a multi-center cohort to evaluate long-term outcomes and late effects following hematopoietic cell transplantation for sickle cell disease: A STAR initiative
Abstracts & Posters · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · Nonpharmacologic Therapy · Stem Cell Therapy