OneSCDvoice archive
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3,376 pages
Education resources
Sickle cell disease and the eye
Scientific Articles · Complications/Clinical Manifestations · Eye Disorders/Ophthalmologic Manifestations · Retinopathy
People
Tamara Nicole New, MD
Healthcare Providers · Healthcare/Research · Hematology · Pediatrics/Child Care
Education resources
The effects of music therapy on transition outcomes in adolescents and young adults with sickle cell disease
Scientific Articles · Alternative Therapy · Disease Management · Music therapy · Nonpharmacologic Therapy
Education resources
The role of nutrition in the pathophysiology and management of sickle cell disease among children: A review of literature
Scientific Articles · Disease Management · Pathophysiology · Pharmacotherapy/Drug Therapy · Supplements
Education resources
504 plan for education because of sickle cell disease
Patient Education · 504 Plan/Individualized Education Program (IEP) · QUALITY OF LIFE · Accomodations · Living with SCD/Quality of Life · School
Education resources
Family functioning, medical self-management, and health outcomes among school-aged children with sickle cell disease: a mediation model
Scientific Articles · QUALITY OF LIFE · Caregiver · Healthcare/Research · Living with SCD/Quality of Life · Parenting · Pediatrics/Child Care
Education resources
Splenectomy versus conservative management for acute sequestration crises in people with sickle cell disease
Scientific Articles · Complications/Clinical Manifestations · Disease Management · Nonpharmacologic Therapy · Sickle Cell Crisis · Splenectomy · Splenic Sequestration
Education resources
The psychosocial impact of leg ulcers in patients with sickle cell disease: I don't want them to know my little secret
Scientific Articles · QUALITY OF LIFE · Complications/Clinical Manifestations · Feelings and Experiences · Leg ulcers · Living with SCD/Quality of Life · Pain · Psychosocial · Stigma · Ulcers
Education resources
The spectrum of sickle hemoglobin-related nephropathy: from sickle cell disease to sickle trait
Scientific Articles · Complications/Clinical Manifestations · Definitions · Disease Basics · Heterozygous · Pathophysiology · Renal Manifestations · Sickle Cell Disease/Sickle Cell Anemia · Sickle Cell Trait/HbAS
Videos and visuals
2017 April 29 SiNERGe Webinar on Bone Marrow Transplants
Webinars · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · Nonpharmacologic Therapy · Stem Cell Therapy
Videos and visuals
5 tips on how I manage sickle cell disease
QUALITY OF LIFE · Videos · Living with SCD/Quality of Life
Videos and visuals
Back to School Tips for Sickle Cell Awareness Month
QUALITY OF LIFE · Videos · Caregiver · Living with SCD/Quality of Life · School