OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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3,376 pages
Videos and visuals
Constance Benson Cured of Sickle Cell, Speaking at Sickle Cell Disease & Gene Editing Briefing in DC
Webinars · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · Feelings and Experiences · Living with SCD/Quality of Life · Nonpharmacologic Therapy · Stem Cell Therapy
Videos and visuals
Latoyia Webb - Sickle Cell Disease Survivor
Videos · Feelings and Experiences · Living with SCD/Quality of Life · Pain
Videos and visuals
Sickle cell sunday 10, Telling people your limitations
QUALITY OF LIFE · Videos · Caregiver · Living with SCD/Quality of Life
Community stories
Adulting is especially difficult for youth with special health care needs
Patient Stories · Adolescent/Young Adult Transition · Caregiver · Living with SCD/Quality of Life · Psychosocial · Responsibility
Community stories
An Almost-Love Story
Patient Stories · Feelings and Experiences · Living with SCD/Quality of Life
Community stories
These people living with an invisible condition are doing their best to raise awareness about it
Patient Stories · Coping · Living with SCD/Quality of Life
Community stories
TLC's Tionne 'T-Boz' Watkins on Living With Sickle Cell Disease
Patient Stories · Feelings and Experiences · Living with SCD/Quality of Life
Community stories
New treatment plan leads to better pain control for acute sickle cell crisis
TREATMENTS · Community Interviews · Complications/Clinical Manifestations · Disease Management · Sickle Cell Crisis · Vaso-occlusive Crisis/Pain Crisis
Community stories
What it's like to be 17 and living with sickle cell disease
Patient Stories · Blood Transfusion · Disease Management · Nonpharmacologic Therapy
Community stories
You'd Probably Never Know This Woman's Had a Debilitating Disease Since Birth
Patient Stories · QUALITY OF LIFE · Coping · Feelings and Experiences · Living with SCD/Quality of Life
Education resources
Disability evaluation under social security (hematological disorders - childhood)
Patient Education · Complications/Clinical Manifestations · Healthcare/Research · Hematological Complications · Pediatrics/Child Care
Education resources
Transcutaneous electrical nerve stimulation (TENS) for pain management in sickle cell disease
Scientific Articles · Complications/Clinical Manifestations · Disease Management · Investigational Therapy/Future Therapy · Sickle Cell Crisis · TENS (Transcutaneous Electrical Nerve Stimulation) · Vaso-occlusive Crisis/Pain Crisis