OneSCDvoice archive
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182 pages from 2022
News and meetings
Reproductive Health and Sickle Cell Disease: Fertility
Happenings
Learn about the fertility, pregnancy, and other sexual health issues and challenges individuals with Sickle Cell Disease face.
Community stories
Baby Dream Comes True for Sickle Cell Patient
sickle cell · sickle · cell · Patient Stories · Pregnancy · Reproductive Health
June 19 celebrates World Sickle Cell Day. Sickle cell patient Daisha Dillon shares her pregnancy success story and how her UConn Health care teams have been with her every step of…
Videos and visuals
Do You Use the Emergency Department for Care of SCD? What to Know Before You Go [English]
infographics/slides
Children and adults with sickle cell disease (SCD) often require care in the emergency department (ED) of hospitals or clinics for health issues related to SCD. The ED may be your…
Education resources
Travelers With Chronic Illnesses
Patient Education
Traveling abroad can be relaxing and rewarding, but physical demands of travel can be stressful for travelers with chronic illnesses, such as heart disease, diabetes, asthma, or…
News and meetings
SCDAA Releases Comments on the CDC’s Opioid Guidelines
Spotlight
SCDAA is pleased to learn that the Centers for Disease Control and Prevention (CDC) is updating the 2016 opioid guidelines. SCD is an inherited red blood cell disorder affecting…
News and meetings
P.O.W.E.R ECHO Project Community Health Worker (CHW) Training - 4/18/24
Happenings
The P.O.W.E.R ECHO Project Community Health Worker Training is designed to assist community health workers with resources and education, in order to strengthen their efforts in…
Community stories
Chasing the Crescent Moon: The Story of Dr. Frempong and Sickle Cell Disease
sickle cell · sickle · cell · Caregiver Stories
News and meetings
The Sickle Cell Disease Association of America (SCDAA) Recognized for Leadership
Spotlight
The SCDAA received the Abbey S. Meyers Leadership Award from the National Organization for Rare Disorders. The annual award honors organizations that serve members with strong…
Education resources
2019-2021 ASH Clinical Practice Guidelines on Sickle Cell Disease: What You Should Know
Guides & Guidelines · disease awareness/support · Disease Management · Resources/Patient Support
In partnership with the Evidence-Based Practice Research Program at Mayo Clinic, the 2019-2021 ASH Clinical Practice Guidelines on Sickle Cell Disease (SCD) were developed using…
Videos and visuals
ASH Clinical Practice Guidelines on Sickle Cell Disease (SCD)
Videos · disease awareness/support · Disease Management · Resources/Patient Support
Find ASH clinical practice guidelines on Sickle Cell Disease's Channels, Infographics and Slides at oneSCDvoice.
Videos and visuals
Infographic: Understanding Sickle Cell Disease - ASH
infographics/slides · disease awareness/support · Disease Management · Resources/Patient Support
Find the trusted resources, videos, visuals, channels and slides of American Society of Hematology(ASH).
Education resources
The State-of-the-Art Methodology Behind New Sickle Cell Disease Guidelines
sickle cell · sickle · cell · Guides & Guidelines · disease awareness/support · Disease Management · Resources/Patient Support
The American Society of Hematology (ASH) believes it is essential to provide updated treatment guidelines that reflect the newest evidence about the disease, ensuring the medical…