Google
Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Lessons Learned From a Randomized Controlled Trial of a Family-Based Intervention to Promote School Functioning for School-Age Children With Sickle Cell Disease
source: Journal of Pediatric Psychology
year: 2015
authors: Daniel LC, Li Y, Smith K, Tarazi R, Robinson MR, Patterson CA, Smith-Whitley K, Stuart M, Barakat LP
summary/abstract:OBJECTIVE:
Tested a family-based group problem-solving intervention, “Families Taking Control,” (FTC) to improve school functioning and health-related quality of life (HRQL) for children with sickle cell disease.
METHOD:
Children and caregivers completed questionnaires assessing HRQL and school functioning and children completed performance-based measures of IQ and achievement at baseline and 6 months later. Families were randomized to the intervention (FTC, n = 42) or delayed intervention control (DIC, n = 41) group. FTC involved a full-day workshop followed by 3 booster calls.
RESULTS:
There were no differences between FTC completers (n = 24) and noncompleters (n = 18). FTC group (n = 24) and DIC group (n = 38) did not differ significantly on primary outcomes at follow-up: number of formal academic and disease-related accommodations, individualized education plan/504 service plan, school absences, school HRQL, or academic skills.
CONCLUSIONS:
Although families found FTC to be acceptable, there were no intervention effects. Challenges of the trial and implications for future research are discussed.
DOI: 10.1093/jpepsy/jsv063
read more full text
+myBinderRelated Content
-
Foundation For Sickle Cell Disease ResearchThe Foundation for Sickle Cell Disease R...
-
Provider Perspectives of Necessary Factors in Sickle Cell Disease Health Care Transition: Results from an Online Sur...Introduction: Survivorship of children w...
-
Beliefs about hydroxyurea in youth with sickle cell diseaseBackground: Hydroxyurea reduces complic...
-
At 16, She’s a Pioneer in the Fight to Cure Sickle Cell DiseaseHelen Obando, a shy slip of a girl, lay ...
-
Wally Smith, MDWally Smith is Professor of Internal Med...
-
Adult Sickle Cell Clinic at UAMSThe University of Arkansas for Medical S...
-
Sickle Cell Emergency Room Care: From Patients to Providershttps://www.youtube.com/watch?time_conti...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.