Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Community Consortium
525 Tribble Gap RoadBox 1195
Cumming, Georgia, United States
Email Phone Web
The Sickle Cell Community Consortium is a US-based non-profit formed in 2014 to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers. These stakeholders collectively form the General Assembly of CBOs and Advocates, the decision-making body of the Consortium. The Consortium acts as an organizing entity providing the framework for the stakeholders of the General Assembly to apply a model of Collective Impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the CBO, Community, and Corporate partnerships best equipped to implement those strategies to achieve significant and sustainable change.
Related Content
-
Blood exchange transfusion safety for priapism in sickle cell disease: a single institution reviewBackground: Males with sickle cell disea...
-
Pain and opioid use after reversal of sickle cell disease following hematopoietic stem cell transplantPain is the most common symptom of sickl...
-
Successful Gene Therapy for Sickle Cell DiseasePrior to this report, the only curative ...
-
The Bad Blood: My Life With Sickle Cell AnaemiaI wake up with an active volcano for a c...
-
Lola Oni, OBELola Oni is a specialist nurse consultan...
-
Inaugural Event, World Cord Blood Day 2017, Highlights Non-Controversial Source of Stem CellsWorld Cord Blood Day (November 15th) wil...
-
10th James Faucett Virtual/Pop-Up Sickle Cell WalkWe are in this fight together for Sickle...