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Living With Sickle Cell Disease – NHS UK

key information

source: NHS UK

year: 2019

summary/abstract:

There are a number of things you can do, and precautions you can take, to stay as healthy as possible if you have sickle cell disease.

 

Managing Sickle Cell Pain:

You can reduce your risk of painful episodes (sickle cell crises) by avoiding things that can trigger them.

• Drink plenty of fluids, particularly during hot weather – dehydration increases the risk of a sickle cell crisis

• Avoid extreme temperatures – you should dress appropriately for the weather and avoid sudden temperature changes, such as swimming in cold water

 

Pregnancy and Contraception:

Women with sickle cell disease can have a healthy pregnancy, but it’s a good idea to speak to your healthcare team for advice first.

It may be useful to find out if your partner is a carrier of sickle cell and discuss the implications of this with a counselor.

Some sickle cell disease medicines, such as hydroxycarbamide, can harm an unborn baby. You may need to be stop taking them before trying to get pregnant.

 

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